News (Updated February 7, 2010)

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Millions at risk if AIDS focus fades, says expert

Kate Kelland, Health and Science Correspondent

LONDON

Feb 5, 2010

LONDON (Reuters) - Global attention is turning away from the AIDS epidemic at just the wrong time and means a fresh wave of the disease could infect millions of people in high-risk countries, a leading expert said Friday.

Health

Alan Whiteside, director of the health economics & HIV/AIDS research division (HEARD) at Kwazulu Natal University said many African countries, where the disease poses the biggest threat, were failing to implement long-term prevention measures and needed help to plan for the battle ahead.

The AIDS threat is still very real in places like Swaziland, Lesotho, Botswana, Namibia, Zimbabwe, Zambia and Malawi and South Africa, he said, and a sense that the international community is ticking it off as "dealt with" is highly risky.

"(Fighting) the AIDS epidemic had a huge amount of support for many years, but there seems to be a perception now that it has been dealt with and we can turn our attention to other issues.

"This is most emphatically not the case in a number of parts of the world. It is not appropriate to turn our backs on it," Whiteside told Reuters in a telephone interview from South Africa , where the disease kills an estimated 1,000 people a day.

Some 33.4 million people in the world have HIV, the sexually transmitted human immunodeficiency virus that causes AIDS. Since AIDS emerged in the early 1980s, almost 60 million people have been infected and 25 million have died of HIV-related causes.

Sub-Saharan Africa is by far the worst affected region, accounting for 67 percent of people infected with HIV and 91 percent of all new infections in children, according to United Nations data.

HEALTH WORKERS, EDUCATION PROGRAMMES

Whiteside said health ministries needed to use aid funds now to equip and train health workers and produce safe-sex education programs to combine the importance of AIDS with a better grasp of the long-term impact of the disease on their countries.

The United States and South Africa recently pledged renewed efforts in the fight against AIDS,. In December the international health funding agency UNITAID approved plans for a drug "patent pool" to help make newer HIV and AIDS medicines available at lower prices to poorer countries.

But Whiteside said a growing sense that AIDS is no longer an emergency was bound to feed politicians' desire to be seen to be taking on new threats.

Climate change and the environment are the big issues now, and politicians may abandon the battle against AIDS, he said.

"At the moment, millions of Africans ore on HIV/AIDS treatment courtesy of the Americans, the Global Fund and other donors. Those treatments have to be for life, so if we see a redeployment of funding, people are simply going to die."

Whiteside pointed to "hyper-endemic" African countries like Malawi and Swaziland , where AIDS is so widespread that half of all women aged 25 to 29 have HIV or AIDS.

Prevention programs are crucial in such countries, he said, but are often patchy and suffer from governments' lack of leadership and cross-department, long-term vision.

Though clearly a personal and community disease, AIDS also threatens civil institutions like the health, agriculture and education sectors, which are needed to cut poverty, spur economic growth and raise living standards.

"We don't seem to have got our head around prevention in the hyper-endemic countries," he said. "We've still got new cases occurring -- and that's ridiculous, it's stupid, especially when you look ahead and see what that means in terms of the numbers of people that will need treatment. If we don't put our effort into prevention, we're likely to see more waves."

(Editing by Tim Pearce)

 

Important HIV show shut down in China

Source: Global Times

February 05 2010

By Chris Hawke

The United Nations Development Program says it is very concerned with the last-minute cancellation of a groundbreaking show aimed at reducing the stigma surrounding HIV carriers and the widespread ignorance surrounding AIDS.

"Our understanding is the radio program will not be aired at this point," Zhang Wei, a UNDP spokeswoman said Thursday. "We're very concerned."

The cancellation of the show, Positive Talks, hours before it was supposed to air on January 17, is the latest indication officials are reluctant to address matters of sexuality in the media. The show had earlier been reported as "postponed."

Other recent signs include police from the cancelling Mr Gay China hours before it was set to take place. In December, ISPs around China began to delete and block access to gay websites, some of which provided information and advice to homosexual and HIV-positive citizens in China . And last month, a regular foreign guest-host of a news show was told he could no longer mention ho-mosexual-related news on air.

In the week before Positive Talks was canceled, state media including Xinhua published articles describing how the first-of-its-kind show would feature a host with HIV and a professional anchor and encourage those with HIV to live an active life as well as try to prevent the spread of the virus.

The UNDP considers the show important because it estimates at the end of 2009, 740,000 people were living with HIV in China . It warned that amid widespread ignorance and discrimination, the epidemic is spreading from high-risk groups to the general population, with more than 70 percent of new infections through sexual transmission.

A third of people in China believe people with HIV deserved it because of immoral behavior, and about half believe that mosquito bites spread HIV, according to the UNDP.

Last February, a report by the Chinese Ministry of Health stated that AIDS was the leading cause of death in 2008 among infectious diseases.

"We are still hopeful the show will air at some point," said Zhang. "We are not sure why it is not being aired."

After the high profile build-up to the show, including a press conference with China 's AIDS ambassador, popular actor Pu Cunxin, officials at China National Radio are silent. Last week, an official at China National Radio said no one knew about the issue and no one was willing to comment on it.

Thursday, attempts to reach the CNR official who spoke at the press conference, identified in reports as Yang Wenyan, failed when the man who answered the number given by the switchboard said he worked for the logistics department, had heard of Yang, but had no idea how to reach him.

Someone who worked for 20 years in the Financial Channel of CNR, where the show was supposed to air, told the Global Times that she knew all of the health program producers but had never heard of the program or of Yang Wenyan. Further calls to the switchboard went unanswered.

"AIDS Ambassador" Pu Cunxin's agent told the Global Times that she does not deal with media requests. Repeated calls and a text message to Pu's mobile phone were not returned.

Li Jing, an official at Marie Stopes International China, a non-profit family planning and sexual health-care organization that had developed Positive Talks for two years along with the UNDP, said the show was cancelled because of "some problems in the process of handling the documents" but that her organization has not yet received any documents stating the program is canceled.

"We have no more details. We also want to know more about it," she said, adding all the parties involved in the show are still pushing for the ground-breaking program to air.

 

Britain gives Sh125b for HIV research

THE British government will give £40m (sh125b) to a research project at the Uganda Virus Research Institute (UVRI) over the next 10 years.

The British High Commissioner to Uganda , Martin Shearman, said the money would go to the Uganda Research Unit on AIDS. The unit, run by the British Medical Research Council, recently celebrated 20 years of HIV/AIDS research in Uganda .

“We’re proud to play a role in the enormous contribution that the unit has made towards saving lives as well as informing health policy and practice in Uganda and elsewhere in Africa ,” Shearman said.

 

Getting 'down wit' Mr HIV

Source: Global Times

[00:03 February 04 2010]

 


Mr HIV

By Yin Yeping 
 
Taking on a responsibility seemingly cold-shouldered by those officials who cancelled, without explanation, the national AIDS awareness radio show Positive Talks last week, steps forward the most unlikely of modern rescuers: a bank.

Standard Chartered Bank (SCB) have launched a website, complete with AIDS-related games and "edutainment" videos, using the Internet to try to stimulate interest and plug the dangerous gap of knowledge among many young Chinese. 
 
A cast of crazy characters 
 
Visitors are presented with two main options, both devised with "youth" firmly in mind. The videos sections, bearing the menacing tag, "Get smart or get HIV," contain six short, impressively produced CGI films, each depicting a variety of vaguely amusing scenarios the makers hope will stimulate the truncated attention span of webheads. These include "Mr HIV" being interviewed for an unspecified job position which entails killing humans, a pep talk for a Kill Bill-style hit squad of sexually transmitted diseases (STDs) and a taxi ride taken by Mr HIV through the human body, looking for vulnerable points.
 
The shorts are peopled by a variety of suitably zany figures; apart from the ubiquitous Mr HIV, you'll meet Cockney wideboy taxi driver Bob, Lou Lou, a jive-talking bacterium who appears to have wandered o. a 70s blaxploitation film set and an unnamed doctor with the thickest Pakistani accent you've heard this side of Lahore.
 
Whether you warm to these characters, or regard them as an excruciating attempt to be hip, the videos pack in as much information into as short a time as possible in the hope that viewers will take in at least something before their attention flags.
 
But if you think you already know all this, proceed immediately to "Stop Mr HIV! Think you know enough to stop me?" which directs users to a basic quiz, with questions such as "Which human fluids can the virus be transmitted through?" or "What is the license plate on Bob's cab?" If you are able to answer 80 percent right (and Lifestyle got a 100 percent score within about 20 seconds), you qualify for some downloadable Mr HIV and Co wallpaper and a chance to put your name on the "AIDS Protect Map." 
 
Worrying figures 
 
AIDS has already claimed 30 million lives and it's estimated another 33 million people are currently infected with the virus, at a rate of 6,800 new cases a day. Of these, a survey by SLG found that 15-to-24-year-olds account for 45 percent of new HIV infections; that's a lot of people who may not end up being life-long bank account holders.
 
Lyn Kok, Managing Director and Country Head of the Beijing branch of Standard Chartered Bank (China) Limited, told Lifestyle that people within this age group are generally more interested in pictures than words. "Online learning is a combination of powerful tools," she said. "The whole learning experience can be more interesting with pictures than reading pages of words."
 
Kok, who is one of 18 "Living with HIV" Ambassadors for SLG worldwide, described to Lifestyle how "when I was in Thailand, the government took a lot of steps to make people know what AIDS is about, which is why the country has relatively lower numbers of people with the virus, compared to Africa." Although Thailand 's 65 million population has a 1 percent infection rate, Thai public policy has been widely commended for averting a far worse crisis in a country famous for its sex industry. 
 
Knowledge = tolerance 
 
SLG's first involvement in AIDS prevention came in badly-hit South Africa , when the virus was contracted by some bank sta. and their families, affecting business. By 2001, the Group had rolled out a workplace program that extended its education, awareness and disease management e. orts to 15 African countries, winning a Global Business Award that, according to a 2008 SLG press release, "effectively recognizes the best workplace HIV/AIDS program in the world."
 
"I don't know if banking knowledge gives us an advantage because HIV and banks don't really connect," Kok admitted. "However, we are an international bank with a specialty in organizational structures, teamwork, innovation and product design, which is effective in the world in terms of training and educating people." She then went on to add: "When you meet HIV positive people, they are normal and all they want is just to be normal.
 
"The challenge for everybody in China is how do we get prevention knowledge to then become an issue that people can understand and not discriminate… knowledge will breed tolerance."
 
From its launch, the website has enjoyed up to 140,000 users and the site is available in a number of languages, from French and Korean to Chinese and English. Their target is 1 million globally (as pledged to the Clinton Global Initiative). "The problem is we cannot do it alone, so help from our customers, sta. and community are also needed," Kok said. And also, let us not forget, the Chinese government.

 

The public face of AIDS in China

Source: Global Times

February 03 2010

By Li Xiaoshu

Zhang Detian can never forget the summer night in 2008 when three luxury cars screeched to a halt in front of his brick cottage and more than 10 officials, all formally dressed in dark suits, confronted him at his doorstep.

"You know what, you got AIDS!" an unnamed official yelled at the 29-year-old farmer.

A cluster of whispering villagers bunched together in front of Zhang's creaking door were suddenly shocked into silence.

"There were crowds of people. I was the last one to learn the fact," Zhang told the Global Times. "I felt as if I were a criminal."

Zhang said he was so angered by this public humiliation that he briefly had thoughts of revenge, "spreading the virus to every person around me."

One week earlier, Zhang had accompanied his wife, who was seven months pregnant, for a routine medical test. The lab results would eventually show that both Zheng and his wife were infected with the AIDS virus. The farmer refuses to discuss how they might have contracted the deadly disease, spread through sex, blood, needles or birth. But the delight of soon becoming a father was ruined by the stigma of becoming an AIDS patient.

The news travelled to every corner of the county.

Villagers dared not buy the fish Zhang and his wife sold.

Local authorities forced his wife to abort the baby boy in her uterus.

Like so many other AIDS patients in China , Zhang and his wife became instant outcasts in a society where the private suffering of AIDS patients is the worst kept secret shame.

The number of people infected with the virus reached 319,877 by October 31, 2009, according to China's Health Minister Chen Zhu who announced the statistic at a press conference in November last year.

Emotional damage

Zhang was among 73 people who tested HIV positive last year in the Chongyang county of Xianning , a prefecture-level city in Hubei Province . Little respect is shown for the privacy of AIDS patients in the county.

One of those who tested positive was 32-year-old Wang Lujin, a sex worker for nearly 10 years. Despite being a prostitute, Wang was able to live with her shame and carry on an otherwise normal family life. But things changed after an acquaintance revealed her secret life as an AIDS patient. At her cousin's wedding ceremony, the acquaintance asked Wang to sit farther away at the banquet table.

In 2008, Wang was diagnosed as an HIV sufferer by the Yixing Center for Disease Control and Prevention (CDC) in Jiangsu Province . Before leaving the city, she asked doctors at the center to withhold the medical information from her family, at least temporarily.

Wang was furious to learn that eight medical workers from the CDC in Chongyang County , her hometown, were already sitting in her house waiting for her to arrive.

"I don't mind dying, but I'm still alive," she told the Global Times. "Now, no one plays mah-jong with me, not even my relatives."

Local medical personnel and residents seem unaware of the emotional damage inflicted on AIDS patients when their confidential medical information leaks out and people begin to gossip.

Jian Jian, 41, a Chongyang AIDS patient seeking treatment in Wuhan , the capital of Hubei Province , discovered that an AIDS prevention director at the local CDC told others about his misfortune during poker games.

He said at least eight people knew of his medical condition within one week, and each of them spread the word to others.

"I want those who ruined my name to pay a price in blood," Jian told the Global Times.

The man and his family prefer to live in a squalid, 13- square- meter bungalow, with only four plastic stools, a wooden table and a makeshift bed as furniture, rather than return to Chongyang, where people would be frightened and embarrassed by their presence.

" I don't want my children to live with this shadow over their heads, " he said.

Though Jian reported the invasion of privacy to the Xianning CDC, which oversees the work of the center in Chongyang, the official with a big mouth neither apologized to him nor offered to compensate him for his emotional pain and suffering.

"Many AIDS control officials do not follow their professional code of ethics because they don't truly understand our problem and emotional pain," Chen said. "They just treat our privacy as a joke, or a tiny matter that nobody cares about. But are we doomed to be hurt?"

"They only worry about how to publicize disease prevention achievements and how to squander government funds."

The two officials from the two centers both declined to comment when a Global Times' reporter asked why no one was reprimanded for the release of confidential medical information.

Chen Depu, a retired official of the Chongyang CDC and founder of Tonggubo'ai Group, a local NGO dedicated to AIDS prevention, said the problem in Chongyang was "totally accidental" and the people responsible should have been warned.

"Health authorities have stressed the protection of privacy during the AIDS control process, but some government employees still ignore the outcome subconsciously," said Chen. "Volunteers and employees in non-governmental organizations are better-behaved."

However, most local AIDS patients said they feel helpless to fight back against the "label" that brands them as disease-ridden pariahs.

Laws ignored

In China , no organization or individual is permitted to disclose the names, addresses and working places of people living with HIV/AIDS, AIDS patients and their relatives without permission, according to the Law on AIDS Prevention and Control enacted on March 1, 2006.

China 's top legislature also approved the Tort Law, which is to take effect in July, highlighting infringements of the right to privacy, such as publishing a patient's name and picture, or harming a person's reputation.

As early as 1988, China enacted laws to protect patient privacy in the Provision for the Monitoring and Control of AIDS.

Though more than 20 years have passed, violations of the law are commonplace.

At Beijing Ditan Hospital, a city resident surnamed Peng found that a blood test result for a female AIDS patient was printed on the reverse side of her own lab report.

The name and age of the AIDS patient could be easily identified even though the information was crossed out with a pen, according to a March 2009 report in the Beijing Times.

The hospital claimed that medical technicians reused the lab sheets to save paper and did not violate the patient's privacy because no address or phone number was shown, according to the report.

"Many patients use false names to protect themselves. That's why almost no real information is released by medical institutions," a director at the hospital told the Global Times, requesting anonymity.

AIDS experts and activists actually encourage patients to play the fake identity trick.

Meng Lin, coordinator of the secretariat of the China Alliance of People Living with HIV/AIDS and an AIDS patient himself, recommends that people should use fake ID cards when picking up prescriptions and undergoing medical tests.

"Keeping your mouth shut is a way to prevent personal information from being compromised. Otherwise, the patients may have to sacrifice their privacy to satisfy public curiosity or people's right to know under the pretext of disease prevention," he told the Global Times.

"The negative side is that the patients feel less sympathy when they become increasingly invisible to others. Some will suffer depression and even commit suicide."

"The Chinese, especially the rural population, neglect privacy protection because the Chinese culture always weighs the collective interest higher than individual rights," said Zhang Yiwu, a professor at Peking University .

"It is rather ironic that people in this country are cautious about protecting their own names but thoughtless about protecting the names of others. They prefer the role of onlookers rather than protagonists."

China is one of the few countries with tough legal restrictions against leaking information about AIDS patients, said LÜ Fan, director of the Division of Policy Study and Information under the National Center for AIDS/ STD Control and Prevention.

"Each person has both rights and obligations. On one hand, it's important to underline the profes-sional ethics for social institutions involved in AIDS prevention; on the other hand, the infected have to inform their sex partners, doctors, and those who might be harmed, " LÜ told the Global Times.

He admitted that it's "sometimes difficult to balance the social interest with patients' individual rights."

Media at fault

During the summer of 2006, Jin Wei, a professor at the Party School of the Central Committee of CPC, took a Beijing newspaper to court.

She sued China Times for publishing the name and photograph of an HIV-infected girl in Henan Province without permission.

It was China 's first lawsuit alleging that the privacy of an AIDS orphan had been violated.

The four-month trial at the Chaoyang District People's Court ended on July 17, 2006, with a ruling that China Times should be fined 20,000 yuan ($2,900) in compensation to the child, and offer an apology for its wrongdoing.

The girl Jin adopted in December, 2004, was so emotionally upset after reading the online report that she couldn't sleep and couldn't stop crying.

"I hate courts but I had to go there. It's disappointing that the media people did not truly feel sorry after they broke the law and harmed a young girl," Jin told the Global Times.

Jin said the reporter repeatedly tried to justify his news report, "using strong words to explain his choice instead of a sincere apology".

"Many news organizations assume that AIDS patients will receive better care if their real identities are revealed, but in reality it's the other way around. These people are extremely fragile and sensitive to potential discrimination," she said.

She said it was difficult to bring charges against the powerful media group. She invited some Beijing reporters to attend the trial, but was informed by the court that the trial wouldn't be open to the press because the judges were under media pressure.

"It was 'we' versus 'them'."

Liu Wei, a legal counselor of the Beijing Aizhixing Institute, the largest HIV/ AIDS NGO in China, told the Global Times that most patients are reluctant to take legal actions for fear that their personal information will leak out. They must also consider the high cost of civil appeals.

"The compensation is usually low compared with the cost of bringing a case to conclusion. Most patients settle out of court without much indemnity," said Liu.

"HIV/AIDS privacy invasion is getting pervasive. It's urgent for the government to improve people's awareness of their wrongdoing."

Li Jianping, 44, a farmer in the village of Wazhai, Jinji county in Tianshui, the second largest city in Gansu Province, Northwest China, faced the same dilemma.

He has lived with "AIDS" attached to his name for the past four years.

In 2007, it was announced that he had been "cured" of AIDS. The story described the "cure" of an incurable disease as a "miracle in human history." Only later did the local center for disease control acknowledge that Li had been misdiagnosed and did not have AIDS.

By that time, the damage to his reputation had been done.

Li, a former vendor and now a porter with a meager monthly income of 1,200 yuan ($175) for a family of five, was too poor to sue all those who made his name synonymous with a deadly disease.

Laughing out loud, he recalled for a Global Times reporter the way he was informed of his blood test. In a solemn voice, the village head cried out the news over a loud speaker, so loud that his mother-in-law could hear the voice five kilometers away.


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