News (Updated February 14, 2010)

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China sees rise of 'HIV phobia'

By Chris Hogg
BBC News, Shanghai

HIV red ribbon banner on the Birds Nest stadium, Beijing, China Hundreds of people in China believe they might have a new disease with HIV-like symptoms, but doctors suggest their illness could be the result of a mental rather than a physical condition.

The Chinese authorities have been accused of covering up respiratory illnesses like Sars in the past.

This time doctors are blaming a breakdown in trust between the medical profession and patients, who fear they are being lied to when their diagnostic tests come back negative.

One man convinced he has the condition insisted on meeting in an empty motel room. He tries to avoid public places to reduce the chances of transmission.

He wears a face mask - he suspects his virus is spread by close contact, through sweat or saliva. He thinks he caught it after he had sex with a female prostitute.

But he is not HIV positive - seven HIV tests have come back negative.

"I've been to many hospitals, I've had many tests. None of these has proved I'm ill," he explains.

Swelling up

"They've examined my organs, tested me for sexual diseases. I'm unwell, but the doctors can't explain why."

There are dozens of Chinese internet chat rooms filled with people who believe they have the same mystery illness.

"I joined the chat room because I was sure I had been infected with this virus," said another patient, who refused to meet face-to-face because, he said, he did not want to pass it to us.

He started to feel ill several months ago, also after a visit to a prostitute, where he says he took precautions to avoid catching HIV.

"Twenty-four hours later I had a strong desire to vomit. I had headaches, I was dizzy, I could feel my internal organs were swelling up. I was in intense pain. This lasted months."

He thought he was HIV positive but was tested several times and there was no sign of HIV antibodies.

The man is unhappy with the response from the medical establishment in China and has tried to bring his illness to the attention of the World Health Organization (WHO) and researchers overseas, but with little success.

"Most of the doctors didn't have the patience to listen to my story," he complains, adding that he is sure the virus is spreading throughout the country.

HIV phobia

Both men are certain they are ill, but at the moment doctors do not think they are dealing with an unknown virus.

“ A real HIV sufferer may take 15 minutes to deal with - a patient with the phobia can take half a day of arguing ”
Dr Cai Weiping

They suspect extreme guilt or anxiety about an act the men are ashamed of - sex with a prostitute - is affecting their immune systems, making them feel ill.

Scientists at the Pasteur Institute in Shanghai started getting letters from the patients in August.

In early December, they began a study of five patients. So far they have ruled out HIV. The work is still continuing.

Last month, China 's Centre for Disease Control tested a larger group of 60 patients. They too ruled out any connection with HIV.

Dr Cai Weiping is a senior Chinese HIV researcher based at the People's Number 8 hospital in the southern province of Guangdong .

He is concerned that growing numbers of patients with what he describes as "HIV phobia" are using up scarce resources.

"They come to have tests again and again, wasting money.

"A real HIV sufferer may take 15 minutes to deal with. A patient with the phobia can take at least an hour, or as much as half a day of arguing before they go away."

Some of the patients claim they have infected family members, friends or colleagues. Dr Cai is doubtful.

"What their relatives tell us about their own symptoms doesn't match what we have heard from the patients."

He believes the problem is psychological rather than physical.

"They think we are concealing an epidemic," he explains.

"In the past we were secretive about the spread of diseases. People didn't believe the numbers of infections we announced.

"Today that's impossible because China is now making much more effort to find patients who have HIV or other diseases."

'Real symptoms'

Although incidences of "HIV phobia" have been reported in other countries, the doctor believes conditions unique to China have produced a larger number of cases here.

“ I haven't been home for a month because I don't want to infect my family ”
Anonymous

Huge changes in the country's medical system in recent years have not worked well, a fact the government acknowledges.

They have left many patients suspicious of the motivations of the medical profession.

"Patients think doctors just see them as machines to make money out of, instead of being driven by a desire to cure them or to save life," says Dr Cai.

The internet has allowed large numbers of people who are frightened but have little expertise to share their fears and in the process heighten them.

But even if the doctor is right and the young man in the motel room is suffering simply from delusion, it is severe enough to leave him trapped behind his mask.

"I feel that I will die soon," he says.

"I haven't been home for a month because I don't want to infect my family. My doctors don't understand me. They say it's caused by fear, but my symptoms are real."

He is so scared he might spread what is wrong with him to others, he has started to withdraw from society.

Physical or mental, the effect of this condition is devastating for him.

Story from BBC NEWS:

 

Number of HIV/AIDS patients in Japan drops for 1st time in 7 years

Saturday 13th February, 2010

TOKYO

The number of people newly infected with HIV or who have developed AIDS in Japan came to 1,428 in 2009, marking the first drop in seven years, the health ministry said Friday in a preliminary report. Although the total figure was down 8% from 2008, when it hit a record high 1,545, the health ministry said it remains cautious because the number of antibody tests conducted last year fell 15%.
   
The health ministry’s AIDS Trend Committee found that of the total, there were 1,008 new HIV infections and 420 AIDS patients, while 94% of the cases involved males. By route of transmission, 62% were infected as a result of same-sex contact and 24% through male-female sexual contact.
   
The number of cases involving people in their 30s grew 4% from the previous year to 581, making it the only age bracket to record an increase.
   
People who did not know that they had been infected with HIV until they contracted AIDS accounted for 29% of the total, slightly up from 2008. The number of such cases increased in all age groups except for people in their 20s.

 

HIV-positive German pop star charged: prosecutors

Feb 12, 2010

Nadja Benaissa of German pop band "No Angels," seen ...BERLIN (AFP) – German prosecutors said Friday they have charged a member of all-female pop group No Angels with causing bodily harm for failing to inform sexual partners that she was HIV positive.

Nadja Benaissa, 27, had sex on five occasions between 2000 and 2004 with three people and did not tell them she was infected, even though she had known since 1999, according to the charge sheet.

"She was well aware that any unprotected sexual contact can lead to the virus being passed on," prosecutors in the town of Darmstadt near Frankfurt said.**

One of the three had since been confirmed as being infected with the HIV virus, which causes AIDS, prosecutors added.

No Angels shot to fame in 2000 thanks to a television talent show and had a string of hits in central Europe before splitting up in 2003. They reformed in 2007 and competed in the 2008 Eurovision Song Contest, finishing 23rd.

 

Freeze on HIV spending sparks concern in Africa

Mon Feb 8, 2010

A man takes an HIV test in 2009 at the World Aids day event ...KAMPALA (AFP) - A US decision to freeze spending on treatment for HIV in several African countries has prompted concern that some of the gains made against the AIDS epidemic since 2003 could be reversed.

President George W. Bush?s Emergency Plan for AIDS Relief (PEPFAR), launched in 2003, focused largely on treating patients in urgent need of medicine, but the new US administration?s programme has shifted away from emergency treatment.

"George W. Bush is a hero in this country," said Peter Mugyenyi, who heads Uganda ?s Joint Clinical Research Centre, a leading AIDS treatment clinic.

Uganda received 929 million dollars (678 million euros) from PEPFAR between 2003-2008 and used much of those funds to provide some 150,000 people with Antiretroviral therapy.

But the US switch in emphasis means that clinics are now being forced to turn new patients away.

"We had drugs under PEPFAR. We didn?t have to turn patients away," he told AFP.

While PEPFAR expanded access to medicine, new HIV infections rose.

So, when PEPFAR was up for renewal the new administration of President Barack Obama demanded greater focus on preventing new infections.

"We have all lost momentum on the prevention front and we?re paying for it now in the form of rising prevalence," PEPFAR?s Kampala-based spokeswoman Lynne McDermott told AFP in an email.

The difficult economic climate meant spending more on prevention necessitated cutbacks on treatment in a country where the infection rate is 6.4 percent in a population of 31 million.

Patients who are already enrolled in a PEPFAR programme will continue receiving free drugs, but most clinics have been told to stop acquiring new patients.

Mugyenyi accuses the United States of breaking its promise to Uganda . "They have changed their programme very regrettably," he said.

"The number one thing is availability of treatment. Any other programme, whatever name they call it, will fail."

Douglas Mugabi, a thin, softly spoken farmer who lives just outside Kampala , told AFP that he and his wife tested positive in 2003, and, when his health deteriorated in 2006, he began receiving free drugs.

Last year, his wife?s condition also worsened.

"When I came in and we found out there was no longer a free programme I became cold," the 48-year-old said. "My wife is worried because the drugs are expensive, but according to our means, we couldn?t support a life-long treatment."

Mugyenyi said many patients have similar stories.

"PEPFAR promised them that if they need treatment they would get it," he claimed. "So the US should not say they are keeping their promise."

McDermott said the US cannot continue treating an ever-increasing number of patients and that unless new infections are reduced Ugandans will always be faced with drug shortages.

She noted that PEPFAR continues to provide two thirds of all HIV/AIDS money in Uganda , and urged Uganda "to identify other resources to fill the remaining gap."

Other resources are not readily available in Uganda , or elsewhere on the continent.

In a November report Medicins Sans Frontiere detailed freezes on ART spending across Africa .

The report accused PEPFAR of "reneging on promises made last year," but also apportioned part of the blame to the Global Fund, the public-private partnership which disburses extra funds to treat HIV/AIDS, tuberculosis and malaria.

Eric Goemaere, an HIV specialist with MSF who has worked in several southern African nations described the notion of spending more on prevention to slow the epidemic as a "fake argument".

He said any prevention strategy relies on people getting tested.

"Why were people getting tests? It is because treatment was available.

"If you look at the facts, it does not make any medical sense to cut back on treatment," he insisted.

One concern is that people like Mugabi might begin sharing their free drugs with a sick friend or family member.

When patients don?t take their drugs as proscribed they are more likely to develop a drug resistant strain of HIV. So pill sharing can be catastrophic.

Mugyenyi told AFP he is "panicking".

"We are heading to carnage. Carnage which had been put to a stop," he said. "There is no prevention programme that can succeed without treatment."

 



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