News (Updated April 10, 2011)

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  Ivory Coast doctor warns hundreds more will die if they can't get HIV treatment

06 Apr 2011

Source: member // Sarah Wheeler

HIV orphan from Ivory CoastAs gun fire rages around the capital of Ivory Coast and thousands flee Abidjan , Dr Sosthene Dougrou, Executive Director from Alliance Cote d’Ivoire , a national charity, is appealing for assistance from the international community to ensure that HIV treatment doesn’t run out or more people will die.

“The situation is very serious. Our programmes are suspended because of the violence. We are very worried that although some HIV treatment is available, supplies will run out in the next 2-3 weeks unless new supplies of medicines are able to be got into the country.

“Our office has had to close because of the fighting; we are unable to access money from the banks as they too have been shut and we can’t get the programme funds so money is running out.

“We know what needs to be done and can respond quicker than international NGOs once the violence subsides but unless we can get more ARVs into the country we are going to see people dying, which will add unnecessary misery to this humanitarian crisis.”

Despite the circumstances, Alliance Cote d’Ivoire is still managing to run some HIV/AIDS counselling and testing services in the quieter parts of the country. But services providing home care and supporting orphaned and vulnerable children have had to stop as Ivoirians are staying at home because of the fighting.

“The national organisations and local community groups know best the people’s needs and we can respond but too often we get ignored as the violence stops and well-intentioned foreign NGOs pour into the country. I have seen it before when working in Haiti .”

“Where the international community and NGOs can play a vital role is in supporting us to find ways to help us access the funds we need from the banks, get the treatment into the country and provide a safe space in which to get our programmes up and running again,” said Dr Dougrou.

“We must suspend the politics here and provide healthcare to the people in need or we face a worsened humanitarian crisis and all the gains made in the fight against AIDS are likely to be lost.”

 

HIV/AIDS: Moving slowly towards an HIV-free generation

04 Apr 2011

NAIROBI , 4 April 2011 (IRIN) - Progress towards an HIV-free generation has been slow, UN Secretary-General Ban Ki-moon said in the Kenyan capital, Nairobi , as he released a report on achievements in combating HIV and AIDS in the past three decades.

"It is time to take a hard look at where we stand today, but looking from where we have come from 30 years ago in the fight against HIV/AIDS, the world has made tremendous progress", he said.

"We are moving towards an HIV-free generation, albeit slowly, but to realize this, a lot more - like increased investment in the fight against HIV, and doing away with prohibitive laws that impede the fight against the disease - needs to be done," he said.

The report - Uniting for Universal Access: towards zero new HIV infections, zero discrimination and zero AIDS-related deaths - noted that the global rate of new HIV infections was declining, access to HIV treatment had increased, and there had been significant progress in reducing mother-to-child transmission of HIV.

By the end of 2010, six million people in low- and middle-income countries were on treatment (up from 5.2 million in 2009), prevention of mother-to-child transmission services reached 50 percent coverage worldwide, and 33 countries - 22 in sub-Saharan Africa - recorded a 25 percent decline in new HIV infections.

"Prevention of mother-to-child transmission (PMTCT) presents the best opportunity for the world to realize an HIV-free generation, and more efforts must be put towards realizing this [goal],” said Michel Sidibe, Executive Director of UNAIDS.

Rebecca Auma, a Kenyan HIV-positive mother who gave birth to HIV-free triplets three years ago, said there was lack of such services, especially in rural areas.

"While I am here today to tell my story of giving birth to HIV free triplets… many mothers… have no access to the services I got. I was lucky, and world leaders must keep their pledges to provide funding for critical services such as PMTCT," Auma said.

Recommendations included revitalizing the push towards universal access to HIV prevention, treatment and care, making HIV programmes cost-effective, efficient and sustainable, promoting the health, dignity and rights of women and girls, and ensuring accountability.

The report cited weak national infrastructures, shortfalls in funding, and discrimination against vulnerable groups as major challenges.

"We will not meet our targets unless these bottlenecks are dealt with… We must increase funding to HIV programmes, and continue to fight discrimination against certain groups such as commercial sex workers," Ki-moon noted.

The report, which will be discussed at the UN High Level Meeting in New York in June, was based on data submitted by 182 countries.

ko/kn/he

 

More US families adopting HIV-positive kids

wpeF.jpg (23719 bytes)Parents juggle medication regimens, fears — and deciding who to tell  

Ignorance and bias related to HIV haven't  vanished in the United States . But the stigma is steadily lessening, especially compared to many of the other countries that are home to an estimated 2.5 million children with the disease.

At forums and over the Internet, parents who have adopted HIV-positive kids are offering advice and encouragement to those who might follow suit. In ebruary, Bethany Christian Services — the largest U.S. adoption agency — unveiled a detailed educational package about HIV adoptions to help the growing number of interested parents make informed decisions.

"We didn't feel we could ethically place these kids without some really solid education for these families," said Sara Ruiter, Bethany 's international services coordinator. "There are some very unique, chronic challenges that we want to be on the parents' mind."

One of the most difficult challenges, for many families, is deciding whom they will tell about the adoptive child's HIV status. Health care providers must be informed — otherwise, under federal and state confidentiality laws, it's entirely optional whether parents notify school officials, neighbors, or anyone else.

As a result, families' approaches vary widely — some are totally open while others, fearful of stigma, guard the information so tightly that even the child may be kept in the dark for many years.

"Once your child's status is disclosed, you cannot 'take it back,' so careful
consideration and thought should be given to this important issue," Bethany advises.

For Tim and Annette Franklin, of Bridport, Vt., the decision to be open about their adopted daughter Gedeleine's HIV status was intended to make clear it's nothing to be ashamed of.

"We were concerned that by being overly secretive, we would be contributing to the stigma," said Tim Franklin, a Congregational minister.

"Inevitably, in families where there are secrets, the secrets end up being destructive," he said. "We felt it's going to come out, and we want to control the way it happens, rather than it coming out in a bad way."

Gedeleine, who will turn 4 in May, was living in a Haitian orphanage when the catastrophic earthquake struck there on Jan. 12, 2010. Already in the adoption pipeline, she was airlifted to Florida 11 days later with dozens
of other children, then taken to her new home in rural Vermont .

There have been moments where Gedeleine balked at taking the twice-daily dose of three HIV medicines. But her parents, who have four biological children ranging in age from 8 to 19, say the adoption has been a heartwarming success overall, to the extent that they are now completing arrangements to adopt an HIV-positive boy from Ethiopia.

The arrival of 13-year-old Epherem will speed up the timetable for the Franklins to tackle one of the other distinct challenges of HIV adoptions — having frank discussions with the child about the impact of their status on any future sexual relationships, and the need to be honest with any partner.

"We'll have to find out what he knows about sexuality, what he knows about his disease, what values he's been exposed to," Tim Franklin said. "One of the things we'll try to help him understand is that he has a responsibility to other people."

Like the Franklins , Ryan and Stacy Vander Zwaag of Mears , Mich. , have decided to be open about the HIV status of their newly adopted 2-year-old daughter, Luisa, who just arrived from Colombia on March 19. They even have a detailed section about HIV on the family blog.

"We did not have to tell anyone," the Vander Zwaags write. "But we believe God has given us this opportunity to educate others about the precious children like Luisa (and adults too) that are living with HIV and AIDS and
help raise awareness and truth instead of ignorance and fear."

Luisa joins a household bustling with the Vander Zwaags' four biological sons, aged 5 to 13, and daughter Anaya, almost 4, who was adopted from Guatemala in 2008.

The boys were briefed in stages about their new baby sister -- first being told she had a blood disorder, then getting the full story that she had HIV. There were specific instructions about precautions to take if Luisa bled from an open cut, but the overall message was one of reassurance that the disease can't be spread through casual contact.

Ryan Vander Zwaag, the youth pastor at a Baptist church, said he and his wife had talked about adoption ever since they married right out of high school. The more they learned about the vast numbers of HIV-positive orphans, the more interested they became in bringing one into their family.
Fears about exposing their own family to health risks and prejudice gradually faded as they read articles, attended a conference, and spoke with other parents who had undertaken HIV adoptions.

"It's not that hard," said Stacy Vander Zwaag. "And there are so many kids who would die without it."

Luisa was in that category, her parents said. A doctor told them she would almost certainly have died soon had she stayed in the Colombian foster home where she was placed as an infant.

"She was removed from her parents because of medical neglect," Ryan Vander Zwaag said. "It was nothing she did. It was choices her mother and father made that got her infected with HIV."

The Vander Zwaags have been home schooling their four sons, but theyhope to place Anaya and Luisa in a nearby Spanish immersion school so the girls can be fluent in the language of their homelands.

wpe11.jpg (21819 bytes)So far, they say, friends, neighbors and church members have been overwhelmingly supportive of the news about Luisa, but they know complications might await in the future.

"As she goes through her teens and her dating years, there are going to be questions, and a lot of tears over it," her father said. "She'll have to find that right guy to walk with her through life. That will be challenging. She can live a full life, she can have kids, by being careful, taking the medicine."

There are no firm figures on the number of HIV-positive adoptions in the U.S. , though adoption experts say most involve children from abroad because American mothers with HIV are usually able to avoid transmitting the disease to their babies by taking medication during pregnancy.

Throughout most of the AIDS epidemic, only a relative handful of HIV-positive foreign children came to the U.S. because of strict U.S. immigration policies that limited entry for anyone with the disease.

In January 2010, that restriction ended — enabling children with HIV to enter as easily as other adoptive children.

"That change helped drastically," said Erin Henderson of Afton , Wyo. , who is HIV coordinator for Adoption Advocates. The agency handled 37 adoptions of HIV-positive Ethiopian children in 2010, up from four in 2006, and is also working on HIV adoptions from India , Ghana , Thailand , China and Eastern Europe .

Henderson 's current job grew out of personal experience — she and her husband have three biological children and eight adopted children, including an HIV-positive daughter and son from Ethiopia .

"Our plan initially was to keep that private — just share it with family embers," Henderson said. "But we decided we would have to be open ... I hated the way it felt to tell our other kids to lie."

When they first heard they were getting HIV-positive siblings, the other children were all 11 or younger — and Henderson said they all took the news cheerfully in stride.

"If they'd been older, it might have been more of an issue," she said. "They didn't know much about it, and we were very matter-of-fact."

There's no consensus that early and full disclosure is best.

Dr. Jane Aronson, a New York city pediatrician who specializes in the care of
children adopted from abroad, argues that HIV-positive children have a right to keep their status private until they're old enough to have a say regarding who is informed.

"Some parents have made a decision to define their children's identity now — it's more about them than about the kids," Aronson said. "That could be very
challenging when the children grow up. They didn't have a choice."

Margaret Fleming, the Chicago woman with three adopted, HIV-positive children, runs a support service called Chances by Choice that recruits and advises parents interested in HIV adoptions. While the group's official
advice is that disclosure "is totally at the discretion of the parents," Fleming personally opted for openness.

Her three first-graders "already know they're HIV-positive," she said. "I am completely open with them, our neighbors, their schools."

At the local elementary school, teachers and staff responded supportively, Fleming said, with the principal easing the concerns of one parent who called to complain.

At a summer camp, however, the director was angry when he learned after-the-fact that one of the HIV-positive children was attending, even though Fleming had mentioned that on the application form.

From a very early age, Fleming's three children with HIV learned they had a chronic health problem that required taking unpleasant-tasting medicine. Initially, she told them their blood "is not strong" — now they, as well as their siblings, know the problem is HIV, and the older ones help administer the medicine when Fleming isn't home.

"They are great ambassadors," Fleming said of her three HIV-positive children. "They've dispelled a lot of myths."

Chief among the myths, she said, are misconceptions on how HIV is ransmitted and fears that HIV-positive children risk not reaching adulthood.

 "My own children look terrific," Fleming said. "They can live long, happy lives."

The Associated Press. All rights reserved.

 

 


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